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Spanish Support Group

Building Community, Support, and Hope for Spanish-Speaking Families

Sickle Cell Prodigy's Spanish Support Group (SSG) was created by Maite Rodriguez & Alexandra Abreu Minier to address a critical gap in the sickle cell community: the lack of culturally and linguistically appropriate support for Spanish-speaking patients and care partners navigating gene therapy, stem cell transplantation, and survivorship. ​The support group was developed to help close these gaps by creating a safe, welcoming space where participants can:

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  • Connect with others who share similar experiences

  • Learn from patients, care partners, and experts

  • Discuss challenges and successes related to sickle cell disease

  • Receive support before, during, and after curative therapies

  • Access culturally responsive education and resources

Program Schedule

​​The group meets virtually on the last Friday of each month making participation accessible regardless of geographic location.

 Upcoming sessions are scheduled for:​​​

  • Friday, September 25, 2026

  • Friday, October 30, 2026

  • Friday, November 27, 2026

  • Friday, December 18, 2026 (moved to the third Friday of the month due to the holiday season)

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Contact
Our Team

Have questions about the Spanish Support Group or wondering if this program is right for you?

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We're here to help.​ Use the form to connect with our team.

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Please note: Participation in our WhatsApp community is reserved for individuals and families who have attended at least one support group session to help maintain a safe, trusted, and supportive environment.

  • TikTok
  • Facebook
  • Instagram
Treatment Interest: Which treatment option are you interested in?
Bone Marrow Transplant
Gene Therapy
Language Preference
English
Spanish

Help Us Understand Your Experience

To help us better understand the needs, experiences, and impact of the Spanish Support Group, we are asking participants to complete a brief survey before and/or after participating in the program.
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If This Is Your First Time Participating

Please complete the Pre-Survey Form before joining your first session.

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