Privacy Policy
Disclaimer
Effective Date: January 1, 2026
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At Sickle Cell Prodigy, we are committed to protecting your privacy. This Privacy Policy explains how we collect, use, and safeguard your personal information when you visit our website or engage with our programs, services, and online forms.
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We may collect the following types of information:
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Personal Information: such as your name, email address, or phone number, when you voluntarily provide it through forms, subscriptions, or event registrations.
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Non-Personal Information: such as browser type, IP address, and pages visited, collected automatically through cookies or analytics tools to improve website performance and user experience.
If you participate in our educational, research, or advocacy programs, additional information may be collected with your consent for communication or participation purposes.
How We Use Your Information
​We use the information we collect to:
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Provide educational resources, program updates, and personalized support.
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Improve our website, services, and outreach initiatives.
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Respond to your inquiries and communicate with you about events or partnerships.
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Maintain compliance with applicable privacy, data protection, and healthcare information standards.
We will never sell, trade, or rent your personal information to third parties.
Data Protection and HIPAA Awareness
While Sickle Cell Prodigy does not provide medical care, we are deeply committed to maintaining the confidentiality and security of all information shared with us.
If any of our programs involve handling health-related data, we follow industry-standard safeguards aligned with HIPAA (Health Insurance Portability and Accountability Act) compliance practices, including secure storage, limited access, and encrypted communications.
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Our website may contain links to third-party sites. Please note that we are not responsible for the privacy practices or content of those sites. We encourage you to review their privacy policies when you visit them.
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If you have any questions, concerns, or requests related to this Privacy Policy or your personal information, please contact us at support@sicklecellprodigy.org