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About Us

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What Is a Giving Circle?

 

A Giving Circle is a collective of individuals who pool their financial contributions to support a shared mission.

 

Giving Circles emphasize community, shared values, and collective impact.

Why Start a Giving Circle?

Giving Circles allow supporters to:

  • Multiply impact through collective giving

  • Build community around sickle cell advocacy

  • Support long-term, sustainable programming

  • Engage peers in meaningful philanthropy

Fundraising : Giving Circle

Survivor-Led Advocacy and Community Initiatives

Discover Sickle Cell Prodigy

Together, Beyond Treatment.

Discover Sickle Cell Prodigy

WELCOME

Hello Sickle Family —we’re really glad you’re here.

 

If you’re living with sickle cell disease, you already know that choosing a bone marrow transplant or a gene-based therapy isn’t the finish line. It’s the start of a brand-new chapter — one we often call Life Ever After.

 

A chapter filled with hope and healing and sometimes questions you didn’t expect:

Who am I after transplant?

What aspects of my life will change?
Where can I go for guidance, support, and community?

We want to help you find those answers.

 

At Sickle Cell Prodigy, we walk alongside patients, survivors, and care partners as you navigate this transformation — from preparing for treatment to rediscovering who you are on the other side. This is a space for learning, reflection, connection, and support, created by and for people who truly understand the journey.

Wherever you are right now, know that you belong here 

Redefining Survivorship in Sickle Cell

We are building a future where every person living with sickle cell disease who undergoes a bone marrow transplant or gene-based therapy has access to a clear, compassionate roadmap for life beyond treatment—one rooted in education, empowerment, and whole-person wellness.

 

Our mission to help patients and care partners find clarity, confidence, and community at every stage of the journey—whether outcomes are successful, uncertain, or still out of reach.Because thriving after the “cure” isn’t just about transformation — it’s about belonging, healing, and hope.

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You made it through treatment.

Now let’s help you thrive — from Warrior to Sickle Cell Prodigy

Redefining Survivorship in Sickle Cell  Disease

Simplifying healthcare navigation for patients exploring transformative treatment options by providing personalized education, navigation, and support

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Our Mission

We are building a future where every person living with sickle cell disease who undergoes a bone marrow transplant or gene-based therapy has access to a clear, compassionate roadmap for life beyond treatment—one rooted in education, empowerment, and whole-person wellness.

 

We exist to help patients and care partners find clarity, confidence, and community at every stage of the journey—whether outcomes are successful, uncertain, or still out of reach.Because thriving after the “cure” isn’t just about transformation — it’s about belonging, healing, and hope.

Our Services

At Sickle Cell Prodigy, our programs are designed to simplify healthcare navigation and empower patients and care partners throughout the transformative treatment journey — from consideration to recovery and beyond. Through storytelling, education, and holistic support, our work centers on helping every individual define what it means to thrive after treatment.

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“The support and resources we've shared with one another has given us the strength to navigate life after transplant with confidence and community!”

L-R: Chris, Kay-diene, Simone, Wunmi, and Amanosi

Post-Transplant Recipients

Our Blog Entries

Join our Sickle Survivor Database

By joining the Sickle Survivor Database, you become part of a growing national network of individuals who have undergone bone marrow transplant or gene therapy.​ This database helps us understand the real-world experiences of survivors, identify long-term needs, and shape programs that support whole-person wellness.

 

Your participation is voluntary, confidential, and deeply impactful.

1. Consent to Participate (Required )
Sickle Cell Genotype
Age at Transplant
Type of Curative Therapy
Ethnicity
Would you like to be contacted for follow-up surveys or studies?
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