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Building Connection & Community

Community is the heartbeat of healing, and every shared story reminds us of our collective strength.

 

At Sickle Cell Prodigy, we believe that community is a powerful form of care. We create opportunities for families to connect, learn from one another, and build relationships that offer emotional grounding and practical support.We connect care partners and donors with others who truly understand — through stories, virtual meetups, and spaces to share encouragement and advice.

Recognition Wall

A digital tribute celebrating donors and caregivers who’ve supported warriors through a transformative therapy

Caregiver Spotlight

Maite Rodriguez-Caraballo

Caregivers are the quiet backbone of the sickle cell community—advocates, coordinators, emotional anchors, and fierce protectors. In this Caregiver Spotlight, we honor Maite Rodriguez- Mom, Wife, Social Worker, and Author - whose dedication, resilience, and love exemplify what it means to show up day after day for someone living with sickle cell disease.

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Just Like the Moon

by Maite Rodriguez

Just Like The Moon is a poignant and uplifting picture book told through the voice of six-year-old Zoe, a spirited, roller-skating, flower-picking girl with a rare genetic condition called sickle cell anemia. With warmth, honesty, and imagination, Zoe invites readers into her world—where blood cells are shaped like crescent moons, hospital visits become secret nighttime missions, and hope takes the form of full-moon cells and magical possibilities.

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Balancing childlike wonder with medically accurate information, Just Like The Moon gently introduces young readers to the realities of living with a chronic illness while celebrating resilience, joy, and the power of community. This story is not only a compassionate educational resource, but also a touching reminder that every child’s uniqueness is a kind of magic.

 

Perfect for families, classrooms, and pediatric care settings, Just Like The Moon encourages empathy, understanding, and courage in the face of challenges—making it an essential read for children and the adults who love them.

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