Our Sickle Family
Friends of the Organization

Friends of Sickle Cell Prodigy (aka our Sickle Family) are advocates, connectors, and community champions who believe that people living with sickle cell disease deserve clear information, compassionate support, and equitable access to life-changing care.

 

They help extend Sickle Cell Prodigy’s reach by amplifying trusted education, survivorship resources, and patient- and care partner–centered guidance—especially for individuals navigating bone marrow transplant, gene therapy, and long-term recovery.

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Become a Part of our "Sickle Family" 

 

Members of our Sickle Family support the mission in ways that feel authentic and meaningful to them:

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• Use your voice to raise awareness about evolving treatment options and survivorship needs in the sickle cell disease global community

• Share Sickle Cell Prodigy’s work through social media, conversations with friends and colleagues, or community storytelling

• Champion access to care and education by supporting peer-to-peer and grassroots efforts that meet patients and families where they are

 

Every action—big or small—helps build trust, reduce isolation, and empower informed decision-making.