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Rebuilding your daily routines — work, family life, and identity — while monitoring short and long-term health outcomes.
Key actions
Update your medical summary and share with primary care provider and specialists.
Participate in story telling workshops to process identity changes (“Who am I after transplant?”) and to help others.
Engage in research and data collection opportunities through the Education & Research Collaborative if interested in contributing to outcomes data.
Outcomes to monitor
Chronic or new symptoms, organ function, psychosocial adjustment, quality of life metrics.
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