Transformative Therapy 101
The Patient Roadmap
Stage 0 — First Steps: Learn & Explore (0–3 months)
Understanding your options, assessing the treatment risks, and determining your eligibility before making decisions about "curative" therapies.
Stage 1 — Decision & Planning (1–3 months)
Confirm your therapy option (clinical trial or standard of care treatment), discuss fertility preservation, and map out the logistics around your treatment option .
Stage 2 — Treatment Window (Day 0 → Discharge)
Safely navigate the treatment period with clear support networks on both the healthcare and personal side
Stage 3 — Early Recovery (0–6 months post-treatment)
Stabilizing the patient medically, monitoring any initial post-treatment side effects, while assessing emotional and identity shifts that need to be addressed.
Stage 4 — Mid-Term Survivorship (6–24 months)
Rebuilding your daily routines — work, family life, and identity — while monitoring short and long-term health outcomes.
Stage 5 — Long-Term Thriving (3 - 15years)
Living your life fully and using your voice as an advocate — mentoring others, contributing to research, and helping to reshape post-treatment survivorship.
Important questions
to ask your
clinical team?
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What type of curative therapy should I consider (transplant vs. gene therapy)?
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What support networks do I need (local caregiver, family, employer flexibility)?
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What are some of the top concerns patients have about treatment and recovery?
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Can you pair me up with someone who has had the same therapy at a similar age?
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Are there financial or travel barriers that I should plan for?