Spanish Support Group
Building Community, Support, and Hope for Spanish-Speaking Families
Sickle Cell Prodigy's Spanish Support Group was created by Maite Rodriguez & Alexandra Minier to address a critical gap in the sickle cell community: the lack of culturally and linguistically appropriate support for Spanish-speaking patients and care partners navigating gene therapy, stem cell transplantation, and survivorship.
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Our goal is to ensure that every family has access to trusted information, meaningful connections, and peer support in their preferred language.
Why This Program Matters
The Spanish Support Group was developed to help close these gaps by creating a safe, welcoming space where participants can:
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Connect with others who share similar experiences
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Learn from patients, care partners, and experts
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Discuss challenges and successes related to sickle cell disease
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Receive support before, during, and after curative therapies
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Access culturally responsive education and resources
Program Structure
The Spanish Support Group meets virtually, making participation accessible regardless of geographic location. Sessions are designed to encourage open discussion, education, and peer connection in a supportive environment.
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What to Expect
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Virtual support group meetings
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Interactive discussions and peer-to-peer support
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Educational presentations and resources
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Facilitated conversations around treatment decision-making with a licensed social worker
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Guidance for navigating the treatment journey
Each session is designed to foster meaningful dialogue while providing practical information that participants can apply to their own healthcare journeys.
Join the Spanish Support Group
Interested in participating?
Complete the interest form below to receive updates about upcoming meetings, resources, and opportunities to connect with other Spanish-speaking members of the sickle cell community.